Batten Disease Causes, Symptoms and its Treatment & Prevention.
Batten Disease Family
Association -
Information about the BDFA, which provides supportive,
informative, networking for the families, carers and professional giving care
to children and adults with this disease in the United Kingdom.
http://www.bdfauk.freeserve.co.uk/ Batten
Disease Information Page -
Information sheet compiled by NINDS, the
National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/batten/batten.htm
Batten Disease Support and Research
Association -
BDSRA goals, support groups, local chapters, and resources
for parents and families of Batten Disease patients.
http://www.bdsra.org/
The Luke and Rachel Batten Foundation -
Created to engage in education and medical research toward diagnosis,
treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten
disease) and to assist persons with the disease.
http://lrbf.org
The Natey Foundation -
Information for parents and families of Battens victims.
http://www.nateyfoundation.org/Nathan's Battle -
Details a
boy's fight against Batten's Disease and dedication to promote awareness to
help find a cure.
http://www.nathansbattle.com
seeAbility -
Juvenile Battens Disease -
An in depth article on this disorder, includes
the stages of the disease and the symptoms.
http://www.seeability.org/randd/jboverview.htm
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