Ectodermal Dysplasia Treatment Cure
The Andy Fund -
Describes the health condition of a boy who was born with ectodermal
dysplasia with immune deficiency caused by a mutation on the fourth part of the
NEMO gene.
http://www.andy.org.mx
The CaF Directory -
Information about the ectodermal dysplasia disorders, the inheritance
patterns and pre-natal diagnosing.
http://www.cafamily.org.uk/Direct/e14.html
The Ectodermal Dysplasia Mailing List -
Includes instructions on joining the list, FAQs and links to further
resources.
http://hometown.aol.com/charliein/ed/home.html
Ectodermal Dysplasia Society -
Information about the organization as well as the ED condition. Includes links,
news articles and contact details.
http://www.ectodermaldysplasia.org/
National
Foundation for Ectodermal Dysplasia -
ED organization based in North America offering information/advice to
individuals and supporting scientific research. Includes a newsletter,
publications, FAQs and a list of services.
http://www.nfed.org/
NORD: Ectodermal Dysplasias -
Offers synonyms, a general discussion and resources.
http://www.rarediseases.org/
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