Xeroderma Pigmentosum Treatment
Children of the Moon -
A portal site that provides an online community for children, teens and adults
with xeroderma pigmentosum.
http://www.moonchildren.com
National Organization of Rare Disorders -
Xeroderma Pigmentosum -
Offers alternative names, a general discussion and resources.
http://www.rarediseases.org/
Online Mendelian Inheritance in Man - Xeroderma
Pigmentosum -
Includes summaries of genetic research results and citations.
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=278700
Understanding Xeroderma Pigmentosum -
Online booklet providing a general overview and description of the disorder and
answers to frequently asked questions. Produced by the US National Institues of
Health. [PDF Format]
http://www.cc.nih.gov/
Xeroderma Pigmentosum -
An article about this disorder in English and Italian along with some images.
http://digilander.libero.it/
Xeroderma
Pigmentosum Society -
Resource for information about the disease and about the not-for-profit support
organization devoted to supporting patients and families and promoting research.
Links, contact information, XP Society news about fund raising events and the
unique Camp Sundown program.
http://www.xps.org
XP
Support Group -
UK-based organisation giving support, help and information to those
affected by xeroderma pigmentosum and other photosensitive conditions.
http://www.xpsupportgroup.org.uk
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