Neuronal Ceroid Lipofuscinosis Causes, Symptoms and its Treatment & Prevention.
Batten Disease Family
Information about the BDFA, which provides supportive,
informative, networking for the families, carers and professional giving care
to children and adults with this disease in the United Kingdom.
Disease Information Page -
Batten Disease Support and Research
Information sheet compiled by NINDS, the
National Institute of Neurological Disorders and Stroke.
BDSRA goals, support groups, local chapters, and resources
for parents and families of Batten Disease patients.
The Luke and Rachel Batten Foundation -
The Natey Foundation -
Created to engage in education and medical research toward diagnosis,
treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten
disease) and to assist persons with the disease.
Information for parents and families of Battens victims.
Nathan's Battle -
Juvenile Battens Disease -
boy's fight against Batten's Disease and dedication to promote awareness to
help find a cure.
An in depth article on this disorder, includes
the stages of the disease and the symptoms.