Prader-Willi Syndrome Causes, Symptoms and its Treatment & Prevention.
Prader-Willi Alliance of New York
-
Represents the interests of individuals in New York State with Prader-Willi
syndrome, their families, and the professionals who provide services to the
Prader-Willi population.
http://www.prader-willi.org Prader-Willi Syndrome - Suite101 -
A forum to provide a support base for PWS without having
to join one of the national or international associations,
and to make people more aware of PWS.
http://www.suite101.com/welcome.cfm/prader_willi_syndrome
Prader-Willi Syndrome Association
of South Africa -
Informative regarding PWS, its symptoms, causes,
prevention and treatment.
http://www.praderwilli.org.za
Prader-Willi Syndrome Association of
Victoria (Australia) -
Includes details about the organization, a
diagnosis/infant guide, a general guide, members stories and links.
http://www.pws.asn.au
The Prader-Willi Syndrome
Association (UK) -
Information and resources about this chromosomal
disorder.
http://www.pwsa-uk.demon.co.uk/
Prader-Willi Syndrome Association (USA)
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Characteristics include hypotonia, insatiable appetite, obesity if food
intake is uncontrolled, hypogonadism and incomplete sexual development,
developmental delays, variable degrees of mental retardation or functional
retardation, short stature (adult), small hands and feet, mild dysmorphology,
and behavior problems which can be severe.
http://www.pwsausa.org/
PWS Notes -
Designed to provide
useful background on Prader-Willi Syndrome (PWS) for parents and to organize
medical information that may be helpful for future research directions.
http://www.pwsnotes.org/
Williams Syndrome and
Prader-Willi Syndrome -
Diagnostic assessment, selected treatment services
and opportunities to participate in research from the Yale University Child
Study Center.
http://info.med.yale.edu/chldstdy/wspws
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